- This week is a special week for my Noah. For newer blog readers, we were very blessed to get to adopt Noah in September 2009. He was born in Ethiopia and adopted by a family in the United States who decided not to keep him after he was diagnosed with multiple significant special needs including a rare form of epilepsy, cortical vision impairment, significant developmental delays, feeding disorder, cerebral palsy.
When Noah came home to us we were given almost no hope at all that we would ever get his seizures under control (after multiple failed seizure drugs). At a year old he could not sit up (and struggled to support his own head). He appeared to be almost completely blind. He was very developmentally delayed and we were told he may never make any progress.
Faith, hope, support, encouragement, access to the best medical care, therapy, and unconditional love go a long way, and yet I know that Noah's story is a miracle. As of this week, his seizures have been gone for THREE years. He is still at a high risk for having seizures, but we have had three blessed years seizure free. He is walking, climbing, communicating, learning, laughing, playing, progressing, loving...every day a miracle.
Last week we had another big milestone. After almost three years of being dependent on a feeding pump (if you have kids imagine for one minute the challenges of having a busy toddler tied to a machine 22 hours a day), we are PUMP FREE. Noah is still 100% tube fed (he struggles with chewing and swallowing without choking) but his stomach has been able to handle larger volumes of formula at once several times a day, so the feeding pump is no longer necessary. A HUGE blessing.
Noah still has significant medical issues and severe developmental delays, but his continued slow but steady progress and the joy he lives with despite his challenges is an inspiration and a reminder every day that we should never doubt what God can do.
|My baby Noah and I playing today|
|I love my mountains|
|We have been together almost 17 years - almost half my life. I so love this guy. :)|
|I am so grateful for the love and support i get from this girl|
- My Mom sent me this quote earlier this week. Love it. :) (And thanks to all of you who also posted or emailed your favorite quotes in response to my last post).
"The person who says it cannot be done should not interrupt the person doing it."- Ancient Chinese Proverb
Ok, that's all for now. Time for bed! My 4am alarm will be ringing before I know it.